BLOGS
EMBRACING OUR WORTH
Pamela Russell
Self-love and acceptance are foundational aspects of our well-being, yet they often feel elusive. In a world that constantly bombards us with messages of comparison and judgment, it’s essential to create a nurturing space where we can reflect on our relationship with ourselves.
RECLAIMING OUR STORIES & OURSELVES
Pamela Russell
As we look inward and reflect on our experiences, it’s important to consider how past wounds have shaped who we are today.
CULTIVATING AUTHENTICITY IN OUR RELATIONSHIPS
Pamela Russell
Relationships are a vital aspect of our lives, shaping our experiences and influencing our overall well-being. Building authentic connections is about reflecting on where we feel most connected and where we long for deeper, more genuine relationships.
OUR STRENGTH IN OPENNESS
Pamela Russell
Vulnerability can feel like both a challenge and a gift. It’s an essential component of deep connections and personal growth, offering us a pathway to connect more profoundly with ourselves and others.
REAP WHAT YOU SOW
Padma Gordon
Creating a sustainable structure in your life as a raregiver means being intentional and present.
BEFORE & AFTER
Padma Gordon
In a sense there is a before and an after–before you noticed symptoms, before you realized that something was different or that your child was not hitting the usual milestones.
WHAT REALLY MATTERS TO YOU
Padma Gordon
How do you orient your life and what are your guiding values? An hour Tuesday women's empowerment circle we looked at what influences us, how do we make decisions and where did these come from…?
ADJUSTING & ADAPTING
Padma Gordon
The truth is that when you receive a diagnosis, you are entering into an entirely new season of life. When you also have a neurotypical child, you will need to adapt to learning how to parent two very different humans at the same time.
RESOURCES FROM YOUR PAST SELF
Padma Gordon
You may find it helpful to look back in time and reflect on the things that you used to do before you were a raregiver.
UNDERSTANDING FINANCES
Christopher Velona
Debt can be a significant source of stress, impacting both financial stability and overall well-being. However, with the right approach, managing and paying off debt is entirely possible.
EMBRACING INFINITE POSSIBILITIES
Pamela Russell
At this very moment, a world of possibilities lies open before you. Even when life feels challenging, the universe offers countless opportunities for growth and transformation.
THE POWER OF TRUE CELEBRATION
Pamela Russell
True celebration is a spontaneous expression of joy that arises from deep within, independent of external circumstances. It doesn't wait for special holidays, formal occasions, or perfect weather.
FINDING CALM & CONNECTION IN EVERYDAY LIFE
Pamela Russell
In the midst of life's chaos and stress, we often find ourselves disconnected from our true essence—the inner Source of energy that nourishes and supports us.
THE ART OF RELEASING COMMITMENTS THAT NO LONGER SERVE YOU
Pamela Russell
In today’s fast-paced, achievement-oriented world, many of us carry a long list of commitments—work, family, social obligations, personal goals—often believing we should be able to juggle it all.
HARVESTING SELF-CARE
Padma Gordon
Each week Raregivers are making deep connections with themselves and each other.
PRIORITIZING YOUR NEEDS
Padma Gordon
It's important for you as a raregiver to take care of yourself first, just like if you're on an airplane and there is an emergency, you must put on your oxygen mass first and then help your Rare child.
EMBRACING WHAT IS
Padma Gordon
In this contemplation, you may have many feelings including anticipatory, grief loss, and perhaps even a little bit of relief that you are no longer in such an intense caregiving role.
REAP WHAT YOU SOW
Padma Gordon
Creating a sustainable structure in your life as a raregiver means being intentional and present.
THE ILLUSION OF LIMITS & EMBRACING INNER FREEDOM
Pamela Russell
Understanding begins with the realization that many of the limits we perceive are often just illusions.
WHAT HAPPENS WHEN YOUR RARE DISEASE CHILD PULLS YOU AWAY AT WORK?
Christopher Velona
Balancing work responsibilities with the needs of a child with a rare disease is incredibly challenging! Does this sound familiar?
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