The truth is you are doing so much in your life, including researching your child's Rare disease, tending to your home, your family, and of course, giving special care and attention to your Rare child as you learn how to manage their symptoms. You owe it to yourself to put self-care on your list.

What does is it like to receive a diagnosis and enter into a whole new reality with many unknowns, a lack of information, as well as a lack of treatment? It is overwhelming. As a raregiver, you are doing it all and being it all for your Rare child and everyone in your family. You are Shero, a superwoman and you need support.

There are many ways to nourish yourself and one of the primary ways is with food. Are you tending to how you eat? Are you listening to your body? Do you nourish yourself regularly or are you skipping meals and waiting until late afternoon to eat your first meal? If so, a practice to support you in being deeply nourished is the practice of mindful eating.

Taking care of yourself as a caregiver is essential—not just for your well-being but also for the quality of care you provide to others. Here are some key benefits of prioritizing self-care:

In today’s busy world, self-care often gets pushed aside—but tending to your inner well-being is just as important as physical hygiene. Renee Schwan explores how a simple daily practice of mindfulness, breathwork, and body awareness can help clear stagnant energy, release stress, and bring you back to a grounded, peaceful state. Start small, stay consistent, and watch your inner world transform.

Christopher Velona

In today’s fast-paced world, mental health has become just as important as physical health. Fortunately, technology has provided us with a range of apps designed to help manage stress, anxiety, depression, and overall mental well-being.

Christopher Velona

Stress is a natural part of life, but for many men, dealing with it can be a challenge. Societal expectations often pressure men to be strong, stoic, and self-reliant, which can make it difficult to acknowledge stress

Renee Schwan

Qi Gong is an ancient Chinese practice that combines movement, meditation, and breathing to improve physical and mental health. Translated from Chinese, qi (pronounced chee) means energy, and gong means cultivation or discipline.

Renee Schwan

Yin energy is yielding, passive and slow. Water traits are assigned to yin. The counter balance is yang energy. In yoga, yin is assigned to gentle slow movements aiming to unlock the body and mind.

Renee Schwan

We will continue to explore the importance of cultivating a breath work practice to regularly ground into the body.

Renee Schwan

Soothing sounding vibrations to calm the body and relax the mind. Some believe it is impossible to think and hum at the same time.

Renee Schwan

 Slowing down and taking time out of the day to connect to body and breath is essential in maintaining balance and overall well being. This week's focus is on the sensation of touch, through guided meditation, breathing exercises, eye stretches and hand massage, we connect the mind to the body in the present moment through intentional focus on our senses.

Renee Schwan

The power of breath, combined with our voice and the ancient flow of qi gong soothes and restores.  The ability to slow down our breathing and become conscious of it is an impactful tool we can take with us everywhere we go.

Renee Schwan

Self care can come in many forms. It doesn’t always have to look like what our minds might first think of when we vision self care. Perhaps we don’t always have time or means to spend hours giving back to ourselves.

Renee Schwan

 The primary goal of practicing breath of fire yoga is to release toxins and chemicals from the cells in your body. Other health benefits include: Expanding your lung capacity and activating the deepest regions of your lungs that aren't used for typical breathing.

Padma Gordon

Becoming an expert takes you away from your old "normal" life and delivers you into a whole new reality that you must learn to navigate.

Padma Gordon

Resilience comes from prioritizing your needs and showing up. What if you could learn to include yourself on your to-do list? Your life changes when you begin to take care of yourself which doesn't mean you're neglecting your Rare child or children.

Padma Gordon

It is common to feel isolated as a Raregiver. Perhaps you are carrying the burden of many feelings and not having anyone to talk to who understands what you are going through. You are not alone, we here at Raregivers's understand and are here for you.

Padma Gordon

We often hear about achieving life balance, which is extra challenging if you are a Raregiver because your life is full of responsibilities and unique challenges.

Christopher Velona

Disasters, whether natural or man-made, pose unique challenges for everyone, but for male caregivers, the stakes are particularly high. As a male caregiver, you are often the backbone of your family’s emotional and physical well-being during these crises.