JOURNEY MAP OVERVIEW

 

STAY IN TOUCH

Sign up & receive updates about our community!

🎉 Join us in celebrating National MPS Awareness Day! 🎉 Today, May 15th, we raise our voices to shine a light on Mucopolysaccharidoses (MPS), a group of rare genetic disorders. 🧬 What is MPS? MPS disorders affect the body's ability to break down
Join Padma Gordon, an embodied mindfulness counselor online Tuesdays at 10 AM PT. This workshop will offer tools for creating and sustaining more loving relationships, navigating challenges, and working together as a team. We will discuss the import
🌸 Happy Mother's Day to all the amazing moms out there! 🌷 Today, we celebrate the love, strength, and endless sacrifices of mothers everywhere. Whether you're a mom, grandmother, stepmom, or mother figure, your unconditional love shapes our world i
Join us this May for our Raregivers Mental Health Matters Campaign that seeks to illuminate the overlooked struggles of those living with rare, chronic, and complex diseases. With 350 million individuals worldwide affected by these conditions—o