The Australia Virtual Caregiver Wellness Retreat is an online wellness experience guided by professional clinicians and self-care experts specializing in rare disease caregiving. You will gain experience, education and empowerment to reconnect you with the person you were before epilepsy touched your life. Many of our participants tell us they feel “invisible” before coming to our retreat experience and they leave feeling empowered and excited.

M.O.R.E. is a wellness experience guided by professional wellness gurus, clinicians and self-care experts specializing in working with rare families. You will gain experience, education and empowerment to reconnect you with the women you were before you became a Raregivers. Many of our mothers tell us they felt “invisible” before coming to the retreat and after they left empowered, excited and most of all connected to a community of women who truly listen without judgement.

The Raregivers™ Men’s Retreat is an experience guided by professional wellness gurus, practitioners and self-care experts specializing in working with rare families. You will gain experience, education and empowerment to reconnect your psyche and your heart with the man you were before rare disease threw a detour into your life ~ and the tools and techniques to sustain your well-being back home.

Raregivers is deeply grateful for AMGEN for sponsoring our webinar “Trauma-Less Needle Pokes: 7 Steps to Easier Injections, Blood Draws, and IVs”It is our intent to offer education and techniques for patients and caregivers to manage stress during needle-poke procedures.

Each step in this plan is backed by evidence-based research, but these are recommendations only and may need to be modified to work best for you or your child’s specific medical situation. This is not medical advice and all steps you take should be reviewed with your medical provider to ensure they are appropriate and safe for you and/or your child.

The experiences of Rare Carriers are largely hidden. Many Rare Carriers feel their stories are overlooked. They describe not being able to see their stories and experiences in other families. Rare Carriers have many questions and fears about the future, but are often unsure where to look for support.

To raise awareness of the Rare Carrier experience Raregivers gathered 24 Carriers from around the world to shed light on their unique challenges.

For six weeks, Raregivers Health & Wellness Practitioner, Dr. Chelsey Hauge, guided participants through a series of thoughtful prompts that focused on topics such as grief, relationships, fertility, genetic testing, identity, and more. We captured these conversations in six shareable infographics ~ graphic testimonies of the emotions, concerns, and triumphs of Rare Carriers.

In this virtual program, Young Adults will learn the art of animation, characters and settings from professionals and artists-in-training at CreativeCave.

Participants will learn how to use a simple narrative structure to bring their Rare archetypes and alter-egos to life. Students will work together to weave elements of their individual story/character into a group-sourced graphic novella. Designed to foster self-awareness and a sense of connection, their characters and the story will be illustrated with the team from CreativeCave.