MEET THE TEAM
Cristol Barrett OβLoughlin
Board President | Founder & CEO, Raregivers & Creator, Raregiversβ’ Coalition
Pam Rattananont
Board Chair | US Patient Engagement, Novartis
Stacey Bailey
Board Secretary | Director of Communications, The Kavli Foundation
Gina Glass
Board Treasurer | Executive Director, DreamSickle Kids
Lisa Burke
Creator & Presenter | RTL Today Host, Radio-Television Luxembourg
Paige Rivard
Former Prader Willi Syndrome Association CEO
Phyllis Barrett Reusche
Writer & Rare Mother | The Bear Facts
Kirsten Meisterling
Chief of Staff / Sarepta
Carol Jacobs
Founder | CaregiversCare (former IBM)
Marcello Schutzer
Vice President of Finance | Fluidra
STAY IN TOUCH
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