MEET THE TEAM

  • Cristol Barrett O’Loughlin

    FOUNDER & CEO

    Based in the Bay Area and operating globally, Raregivers™ offers relief services to caregivers through sustainable health and wellness training, transformative retreats, and a globally connective mother-to-mother network. Raregivers™ believes in uplifting the family by caring for the caregivers, particularly mothers who are the primary caregiver 82% of the time. Founder & CEO, Cristol Barrett O’Loughlin, illustrates the unthinkable realities of losing three older brothers to the rare genetic disease Mucopolysaccharidosis, as well as the family difficulties (and triumphs!) while caring for children with a life-limiting illness in her TEDx talk Caring for the Caregivers.

We are seeking *NEW* Volunteer Community Manager!

Are you passionate about supporting caregivers and building meaningful connections? Raregivers is looking for a dedicated Volunteer Community Manager to help engage, support, and grow our incredible global caregiver community.

If you love fostering conversations, organizing community initiatives, and making a real impact, this is your chance to be part of something special!

Interested? Fill our the form below!

Cristol Barrett O’Loughlin

Board President | Founder + CEO, Raregivers & Creator, Raregivers™ Coalition

Pam Rattananont

Board Chair | US Patient Engagement, Novartis

Jay Singh

Senior Foreign Service Officer + Mission Director | USAID

Gina Glass

Board Treasurer | Executive Director, DreamSickle Kids

Lisa Burke

Creator + Presenter | RTL Today Host, Radio-Television Luxembourg

Paige Rivard

Former CEO | Prader Willi Syndrome Association

Stacey Bailey

Board Secretary | Director of Communications, The Kavli Foundation

Eden Phillip Clore

Retired (after 31 years) | United States Air Force

Phyllis Barrett Reusche

Rare Mother + Writer + Owner | The Bear Facts

Kirsten Meisterling

Chief of Staff | Sarepta Therapeutics

Carol Jacobs

Founder | CaregiversCare (former IBM)

Jill Hull

Client Executive | Milestone Technologies

Jana Benesh

Neuroscientist | Clinical Strategist | Rare Disease Patient Advocate