JOURNEY MAP OVERVIEW
The Raregivers™ Emotional Journey Map Guidebook is an evidence-based resource, developed from 287 peer-reviewed studies, expert stakeholder reviews and insights from global leaders in mental health and rare disease care.
Raregivers Global is a nonprofit dedicated to supporting the mental and emotional health of caregivers, patients, and professionals within rare, chronic and complex disease communities. Through peer-to-peer support, research-backed tools, and global advocacy, Raregivers™ is building a sustainable ecosystem of emotional care for the 350 million people living with rare diseases and the 2.8 billion caregivers and professionals supporting them.
About the Raregivers™ Coalition
The Raregivers Coalition underscores the importance of stakeholder collaboration in global social impact initiatives. They actively seek partners to further their mission to emotionally support 3.5 million Raregivers by 2026. Foundational contributors to the Raregivers™ Emotional Journey Map Guidebook include: IndoUSrare, Acadia Pharmaceuticals, Amgen, Amicus, Alexion Charitable Foundation, BioMarin, EMD Serono, Harmony Biosciences, IONIS, PTC Therapeutics, Regenxbio, Sanofi, Ultragenyx, National Organization for Rare Disorders (NORD), Ford/Tuttle-Click Automotive, Davis/Dauray Family Fund, The Ehlers-Danlos Society, Prader-Willi Syndrome Association, The Assistance Fund, Remember the Girls, Global Genes, Children’s Hospital of Orange County (CHOC)/UCI Health, The Epilepsy Foundation, SCN2A-Australia, Purrble, Tides Foundation, University of New South Wales (UNSW)/Sydney Children’s Hospitals Network (SCHN-Australia), Wildflower Apothecary, We Are Brave Together, Microsoft employee volunteers and Raregivers Inc (formerly ANGEL AID).
STAY IN TOUCH
Sign up & receive updates about our community!