RAREGIVERS COALITION

Expanding Global Reach to Support Rare Disease Families & Professionals

Congratulations on the launch of the Raregivers Coalition’s latest initiative and our exciting partnership with Fondation Ipsen to distribute free digital and print versions of the Raregivers™ Emotional Journey Map Guidebook across six (6) continents.

We know you’ll want to share this milestone with your network, and we’ve provided this Communications Toolkit to assist in amplifying our collective impact.

Communications Toolkit Includes:

✔ Talking Points – For discussing the Raregivers Coalition and its mission

✔ Social Media Captions – Pre-written for you to copy/paste onto LinkedIn, Facebook, Instagram, and/or Twitter/X

✔ Press Release – Link to Press Release and PDF to download

✔ Logos & Graphics – Assets for you to share websites, social media, and promotional materials

TALKING POINTS

Key Messages:

  • The Raregivers Coalition is expanding its global reach to provide emotional relief and support for rare disease caregivers, patients, and professionals.

  • Fondation Ipsen has joined the Raregivers Coalition as a key partner and will distribute free, translated digital versions and 2,000 printed copies of the Raregivers™ Emotional Journey Map Guidebook to Rare Disease Centers of Excellence across six (6) continents.

  • Rare Disease Day (February 28) is a global movement to raise awareness of the 350 million people living with rare diseases and the 2.8 billion caregivers and professionals supporting them.

  • The Raregivers™ Emotional Journey Map Guidebook is an evidence-based resource informed by 287 peer-reviewed studies, stakeholder reviews, and global mental health leaders.

  • Microsoft Corporation’s multilingual partnership ensures the guidebook is available in over a dozen languages, making it accessible to rare disease communities worldwide.

  • The Raregivers Coalition invites corporate and philanthropic partners to join the movement through sponsorships, volunteer initiatives, social impact investments, and grants.

SOCIAL MEDIA CAPTIONS

Facebook/LinkedIn/Instagram:

  • Global Impact Alert! We are thrilled to announce our partnership with @Fondation.Ipsen to distribute 2,000 copies of the Raregivers™ Emotional Journey Map Guidebook ahead of Rare Disease Day 2025. This groundbreaking resource will help caregivers, patients, and professionals navigate the emotional challenges of rare disease. Learn more: https://www.raregivers.global/ 💜 #RaregiversCoalition #RareDiseaseDay #FeelingsFirst

  • Caregiving is emotional, and no one should navigate it alone. That’s why we’re partnering with @Fondation.Ipsen to expand access to emotional relief tools for the 350 million rare disease families worldwide. Together, we are making an impact! #RaregiversCoalition #MentalHealthMatters #FeelingsFirst

Instagram Stories & Reels (Suggested Caption)

  • Raregivers™ Emotional Journey Map Guidebook is HERE! We’re making emotional relief a priority for caregivers, patients & professionals. Thanks to @Fondation.Ipsen, we’re bringing this resource to Rare Disease Centers worldwide. 🌍 #RaregiversCoalition #RareDiseaseDay #FeelingsFirst

Twitter/X:

  • Exciting news! Raregivers Coalition partners with #FondationIpsen to distribute free digital and print versions of the Raregivers™ Emotional Journey Map Guidebook across six (6) continents. #RareDiseaseDay #RaregiversCoalition #FeelingsFirst

  • We are proud to partner with @Raregivers and @Fondation.Ipsen to bring critical emotional support resources to rare disease families & caregivers worldwide. Read more: [INSERT PRESS RELEASE LINK] #RaregiversCoalition #RareDiseaseDay #FeelingsFirst

  • "When life gets medical, people get emotional." 💜 Excited to launch this global initiative for emotional relief in rare disease care. #RaregiversCoalition #MentalHealthMatters #FeelingsFirst

LOGOS & GRAPHICS

Please proceed to use these creative assets on your websites, emails, and/or social media.

  • Raregivers Logos

  • Emotional Journey Map

  • Guidebook

  • Instagram Posts: 4:5 aspect ratio

NEXT STEPS

✔ Share the news on your social platforms using the messages provided

✔ Encourage your network to get involved in Rare Disease Day on February 28, 2025

✔ Tag @raregivers/ and @Fondation.Ipsen in your posts

Thank you for your support in spreading awareness and making emotional relief for rare disease communities a global priority.

Together, we are empowering Raregivers™ worldwide.