BLOGS
FINDING CALM & CONNECTION IN EVERYDAY LIFE
Pamela Russell
In the midst of life's chaos and stress, we often find ourselves disconnected from our true essence—the inner Source of energy that nourishes and supports us.
THE ART OF RELEASING COMMITMENTS THAT NO LONGER SERVE YOU
Pamela Russell
In today’s fast-paced, achievement-oriented world, many of us carry a long list of commitments—work, family, social obligations, personal goals—often believing we should be able to juggle it all.
HARVESTING SELF-CARE
Padma Gordon
Each week Raregivers are making deep connections with themselves and each other.
PRIORITIZING YOUR NEEDS
Padma Gordon
It's important for you as a raregiver to take care of yourself first, just like if you're on an airplane and there is an emergency, you must put on your oxygen mass first and then help your Rare child.
EMBRACING WHAT IS
Padma Gordon
In this contemplation, you may have many feelings including anticipatory, grief loss, and perhaps even a little bit of relief that you are no longer in such an intense caregiving role.
REAP WHAT YOU SOW
Padma Gordon
Creating a sustainable structure in your life as a raregiver means being intentional and present.
THE ILLUSION OF LIMITS & EMBRACING INNER FREEDOM
Pamela Russell
Understanding begins with the realization that many of the limits we perceive are often just illusions.
WHAT HAPPENS WHEN YOUR RARE DISEASE CHILD PULLS YOU AWAY AT WORK?
Christopher Velona
Balancing work responsibilities with the needs of a child with a rare disease is incredibly challenging! Does this sound familiar?
THE JOURNEY OF HEALING & WHOLENESS
Pamela Russell
Healing begins with the courage to acknowledge and understand our wounds. Each of us carries our own unique scars, often protecting them with a readiness to be hurt again.
MASTERING WORKPLACE DYNAMIC
Christopher Velona
In the vast landscape of professional life, the workplace often feels like a world unto itself—one with its own rules, hierarchies, and dynamics.
THE BEAUTY OF TRUE FRIENDSHIP
Pamela Russell
When we connect with our inner love, being with others and being alone both become natural and fulfilling experiences.
ARE YOU BALANCED?
Padma Gordon
Ask yourself whether your life is in balance or not? In order for a Raregiver to lead a relatively balanced life, you need to ask for help.
BUILDING A SUSTAINABLE STRUCTURE
Padma Gordon
How do you build a sustainable structure that supports you to practice regular self-care, set boundaries and ultimately live in alignment with yourself?
THE ART OF RELEASING COMMITMENTS THAT NO LONGER SERVE YOU
Pamela Russell
In today’s fast-paced, achievement-oriented world, many of us carry a long list of commitments—work, family, social obligations, personal goals—often believing we should be able to juggle it all.
LIFESTYLE AND EXPERIENCES
Christopher Velona
Living a fulfilling life hinges not only on one's achievements but also on the quality of their lifestyle and experiences. Maintaining a balanced lifestyle and embracing diverse experiences is crucial for men's overall well-being and personal growth.
SOCIAL AND COMMUNITY ENGAGEMENT
Christopher Velona
Volunteerism is a powerful tool for building social connections, fostering community spirit, and enhancing individual well-being.
MENTAL AND EMOTIONAL WELL-BEING
Christopher Velona
Fostering mental and emotional well-being involves adopting various coping strategies, relaxation techniques, and mental health practices. We get so busy during the day that we do forget about ourselves.
EMBRACING DIFFERENT TYPES OF INTENSITY
Pamela Russell
Intensity manifests in various forms, each carrying its unique energy and influence on our lives. There is the intense energy, driven by the need to move quickly through time and space, akin to driving a car at top speed to reach a destination.
EMBRACING THE POWER OR SIMPLICITY
Pamela Russell
How many people do we know who, just when they were completely overloaded with too many projects have suddenly come down with the flu or taken a fall?
BREAKDOWN OR BREAKTHROUGH?
Padma Gordon
We talked about what keeps us stuck in our old habits and how these old habits limit our ability to live fully. We asked questions like: What is needed to have a breakthrough and what is in the way?
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