SAVE-THE-DATE February 28, 2025

On February 28th, we will celebrate Rare Disease Day, a momentous day dedicated to raising awareness about the challenges faced by those living with rare diseases and their families. At our organization, Raregivers™ , we stand in solidarity with this global initiative, advocating for increased understanding, support, and resources for rare disease patients. Through our commitment to Rare Disease Day, we strive to amplify the voices of those often marginalized in the medical community.

On February 29th, we celebrated Rare Disease Day by joining our partners NORD (National Organization of Rare Disorders) at NBC’s The TODAY Show. It was an amazing moment for our Founder & CEO, Cristol Barrett O’Loughlin, to share with her daughter, Chloe O’Loughlin, and Board Member, Paige Rivard.

Chloe & Cristol O’Loughlin

Rare Disease Day Interview

Scarf designed by Chloe O’Loughlin

Positive Exposure Art Gallery

NORD Interview

The TODAY SHOW

We express our deepest gratitude to the rare disease families who have courageously shared their testimonials, shedding light on their unique journeys as Raregivers. Your unwavering strength and resilience inspire us to continue our mission of fostering a more inclusive and supportive environment for all individuals impacted by rare diseases. Together, we are making strides towards a brighter future for the rare disease community.

Thank you to our incredible raregiver families for helping shed a light on the rare disease community. Save-the-date for "Rare Disease Month 2025”.

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