Pamela Russell

Vulnerability can feel like both a challenge and a gift. It’s an essential component of deep connections and personal growth, offering us a pathway to connect more profoundly with ourselves and others.

Padma Gordon

Creating a sustainable structure in your life as a raregiver means being intentional and present.

Padma Gordon

In a sense there is a before and an after–before you noticed symptoms, before you realized that something was different or that your child was not hitting the usual milestones.

Padma Gordon

How do you orient your life and what are your guiding values? An hour Tuesday women's empowerment circle we looked at what influences us, how do we make decisions and where did these come from…?

Padma Gordon

The truth is that when you receive a diagnosis, you are entering into an entirely new season of life. When you also have a neurotypical child, you will need to adapt to learning how to parent two very different humans at the same time.

Padma Gordon

You may find it helpful to look back in time and reflect on the things that you used to do before you were a raregiver.

Christopher Velona

Debt can be a significant source of stress, impacting both financial stability and overall well-being. However, with the right approach, managing and paying off debt is entirely possible.

Pamela Russell

At this very moment, a world of possibilities lies open before you. Even when life feels challenging, the universe offers countless opportunities for growth and transformation.

Pamela Russell

True celebration is a spontaneous expression of joy that arises from deep within, independent of external circumstances. It doesn't wait for special holidays, formal occasions, or perfect weather.

Pamela Russell

In the midst of life's chaos and stress, we often find ourselves disconnected from our true essence—the inner Source of energy that nourishes and supports us.

Pamela Russell

In today’s fast-paced, achievement-oriented world, many of us carry a long list of commitments—work, family, social obligations, personal goals—often believing we should be able to juggle it all.

Padma Gordon

Each week Raregivers are making deep connections with themselves and each other.

Padma Gordon

It's important for you as a raregiver to take care of yourself first, just like if you're on an airplane and there is an emergency, you must put on your oxygen mass first and then help your Rare child.

Padma Gordon

In this contemplation, you may have many feelings including anticipatory, grief loss, and perhaps even a little bit of relief that you are no longer in such an intense caregiving role.

Padma Gordon

Creating a sustainable structure in your life as a raregiver means being intentional and present.

Pamela Russell

Understanding begins with the realization that many of the limits we perceive are often just illusions.

Christopher Velona

Balancing work responsibilities with the needs of a child with a rare disease is incredibly challenging! Does this sound familiar?

Pamela Russell

Healing begins with the courage to acknowledge and understand our wounds. Each of us carries our own unique scars, often protecting them with a readiness to be hurt again.

Christopher Velona

In the vast landscape of professional life, the workplace often feels like a world unto itself—one with its own rules, hierarchies, and dynamics.

Pamela Russell

When we connect with our inner love, being with others and being alone both become natural and fulfilling experiences.