Join the #RAREGIVERS100 Movement!

What is a “Raregiver”?

1. Those rare individuals who hold both hope and grief in the same human heart.

2. Caregivers, patients, family, friends, teachers, doctors, nurses, medical professionals, genetic counselors, researchers, patient advocates, pharmaceutical employees, academics, gamers, entertainers, technologists, athletes, musicians, volunteers, donors and all others giving their talents, time and life-force to further and honor chronically medical lives.

It's time to shine a light on the unsung heroes of rare, chronic, and complex diseases – the Raregivers 💖

Who are the most influential musicians, athletes, professionals in your life that have been phenomenal in transforming the shared emotional journey of Raregivers across the world? We invite you to send in your nominations and shine the light on these heroes 🌟

Head to the form below to submit your nominations today!

Together, we can bring visibility to these incredible caregivers, patients, and professionals 💖

Send In Your Nomination Today!

#Raregivers100

Nomination Criteria: Your nominee has a prominent “digital footprint”, meaning they are known publicly through active social media posts, blogs, email, podcast, web, performances, thought leadership, etc. In short, they are highly engaged in their community, whatever that community may be, and they have a track record of shining a light on individuals living with rare, chronic or complex diseases, their caregivers or the healthcare professionals in that ecosystem of support. They may also provide education about the emotional impact of the caregiver experience or serve individuals living with complex medical situations through art, science, advocacy or philanthropy.