Celebration banner with a sun graphic displaying "25" and text "Celebrating 25 years of care, community, and impact!" in green letters.

Join us!
Raregivers’ Global Impact Awards & 25th Anniversary Celebration
Friday, September 12, 2025 at Salesforce Tower, San Francisco

You will be inspired. Meet the rarest of mothers, fathers, physicians and our #Raregivers100 Honorees ~ trailblazers of influence in entertainment, education, pharmaceuticals and philanthropy. Your passport to impact starts...NOW.

Relief For Hearts Who Need It Most

What is a “Raregiver”?

1. Those rare individuals who hold both hope and grief in the same human heart.

2. Caregivers, patients, family, friends, teachers, doctors, healthcare professionals, patient organization leaders, researchers, academics, advocates, biopharmaceutical employees, gamers, entertainers, technologists and all others in the community giving their talents, time and life-force to further and honor chronically medicalized lives.

Honor Our Raregivers™

There are 350 million people worldwide living with a rare disease, more than AIDS and cancer combined. There are no cures for the 10000+ rare diseases and only 5% have treatments. One third of rare children will not see their 5th Birthday.

Raregivers provides emotional support to families living with rare, chronic and complex diseases. The reality of daily long-term caregiving is unimaginable. Your generous donation goes directly to sponsoring a Rare Mother or Rare Father in our weekly support groups and quarterly wellness retreats @ Barrett Family Ranch. We can do so much - together.

Group of women sitting on grass, meditating with hands on each other's shoulders.
Infographic titled 'Raregivers Emotional Journey Map' depicting the cycles of hope and grief for caregivers, patients, and professionals. It features a scenic illustration of a river journey with six stages: 1) Noticing Changes, 2) Adjusting Diagnosis, 3) Shifting Responsibilities, 4) Full-Time Care, 5) End of Life, and 6) Finding Meaning. Each stage includes key emotional and practical challenges. Additional elements include every day stressors, relief, and ongoing health and financial navigation. Various support activities like counseling and mindfulness are highlighted. The background shows life and medical paths diverging.

Raregivers Journey Map

The emotional health of patients, their caregivers, and the professionals supporting them is a drastically undocumented and unsupported reality in rare, chronic and complex disease communities. Since 2019, Raregivers™ has been leading a meta-study of published research, proprietary data and documented, lived experiences that clearly define the common emotional impact on medicalized lives. Our Raregivers™ Emotional Journey Map is free, downloadable for anyone to use in family, medical, social or workplace conversations to help increase understanding about feelings. It is for you.

Raregivers™ Workshops

  • Women holding hands in a circle with "Raregivers: Women's Empowerment Circle with Padma Gordon" text overlay.

    Women's Empowerment Circle

    Tuesdays at 10:00 AM PST

    Join Padma Gordon, embodied mindfulness counselor, for a heartfelt and practical weekly workshop designed to support you in your relationship journey.

    Bring your questions, challenges, and triumphs — we’ll gather in community to support one another on the path of mindful connection.

    Tune in from the comfort of your home and take a step toward more conscious, connected relationships.

    Learn More
  • Woman practicing yoga indoors with text overlay promoting "Soulful Stretch & Strengthen" session hosted by Raregivers and Renee Schwan.

    Soulful Stretch & Strengthen

    Breathe, release, and rebuild with Soulful Stretch & Strengthen — an on-demand wellness experience created for caregivers, by caregivers. This gentle yet powerful series combines mindful movement, deep stretches, and bodyweight strength to help you reconnect with yourself, reduce stress, and restore balance — anytime, anywhere. Whether you're a beginner or simply need a moment to recharge, this is your space to move with intention and care.

    Watch Now
  • Two men horseback riding in a grassy field with mountains in the background, overlaid by the text 'Raregivers Global,' 'A Man’s Journey,' hosted by Christopher Velona and Second Hand Steve. Includes website and social media handle @raregivers."

    A Man's Journey

    First Monday of Every Month @ 6:00 PM PST

    An honest, heartfelt conversation series focused on breaking the stigma around men’s mental health and the emotional toll of being a caregiver.

    Every episode is more than a story — it’s a message to all men and caregivers: you’re not alone. Join us to listen, share, and be part of a growing community that supports one another through the hardest, most meaningful parts of life.

    Learn More
  • Promotional graphic for "Empowering Raregivers: Global Leaders" hosted by Dr. Laura Riordan and Cristol Barrett O'Loughlin, CEO of Raregivers, featuring a green background and wireframe globe.

    Empowering Raregivers: Global Leaders

    Fourth Wednesday of Every Month 8:00 AM PST

    Join co-hosts Dr. Laura Riordan and Cristol Barrett O’Loughlin, CEO of Raregivers, for a powerful monthly interview series spotlighting global leaders in rare disease advocacy.

    Each month, we explore the lived experiences of Raregivers — caregivers and changemakers championing mental health and emotional wellbeing in rare, chronic, and complex disease communities across the world.

    Join on Zoom
  • Close-up of an adult hugging a child while sitting on a bench.

    "Being a medical parent is full of challenges. There are times you feel like you're helpless and hopeless. This community always picks me up when I need it most ."

    -Megan L.

  • "I had to find my own way of getting stronger. I did it because my children needed me. I feel safe in a community knowing I'm not the only one."

    "I had to find my own way of getting stronger. I did it because my children needed me. I feel safe in a community knowing I'm not the only one."

    -Phyllis R.

  • Black and white image of two people holding hands.

    "This group gets me connected with people who really understand with no judgement. Sometimes I just need to hear it's going to be okay."

    -Julie S.

  • A hand holding a small daisy flower with a blurred mountainous landscape in the background.

    "I enjoy connecting with other Rare Parents. It does a lot for my heart... having a safe space to share and understand where others are at to has helped light a path to growing and becoming stronger."

    -Kelsey C.

Family sitting on grass with autumn leaves, mother holding twins, father holding child, text 'Susie Dugan Rare Mother, UBA5, Full Story' with Raregivers logo.
Two people in costumes, one as Superman in a wheelchair and the other in a blue and yellow outfit with fur trim, outdoors near a house with Halloween decorations.
A family portrait featuring a woman holding a baby, a man, and a young boy. Text reads: "Michelle Fruhschien, Rare Mother // Jordan's Syndrome." A button below says "Full Story." The logo "Raregivers" appears at the top.
A family of four wearing matching holiday pajamas sits in front of a decorated Christmas tree. Stockings labeled "Dad" and "Mom" hang on the mantle. The image includes text "Jillian Arnold" and "Rare Mother // ASMD" with a button labeled "Full Story.
A smiling woman takes a selfie with a child wearing a red polka dot blanket, who has a tracheostomy tube. Text reads: "Abby Zachritz, Rare Mother, Anoxic Brain Injury." Logo: Raregivers. Button: Full Story."

Raregivers™ Coalition Partners

Logos of various companies and organizations displayed on a green background. Includes Microsoft, Ford, Alexion, IPSEN, Harmony Biosciences, Sanofi, Epilepsy Foundation, Prader-Willi Syndrome Association, Global Genes, and others.