Relief For Hearts Who Need It Most
What is a “Raregiver”?
1. Those rare individuals who hold both hope and grief in the same human heart.
2. Caregivers, patients, family, friends, teachers, doctors, healthcare professionals, patient organization leaders, researchers, academics, advocates, biopharmaceutical employees, gamers, entertainers, technologists and all others in the community giving their talents, time and life-force to further and honor chronically medicalized lives.
Join the #Raregivers100 Movement!
Head to the form below to submit your nominations!
It's time to shine a light on the unsung heroes of rare, chronic, and complex diseases – the Raregivers 💖
Who are the most influential musicians, athletes, professionals in your life that have been phenomenal in transforming the shared emotional journey of Raregivers across the world? We invite you to send in your nominations and shine the light on these heroes 🌟
Together, we can bring visibility to these incredible caregivers, patients, and professionals. The #Raregivers100 will be announced during our LIVE Broadcast @ Microsoft Corporation on October 30th.
Nomination deadline Extended to December 31, 2024!
Raregivers™
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Self Care Tuesdays
Tuesdays at 10:00 AM PST
Join Padma Gordon, an embodied mindfulness counselor Tuesdays at 10 AM PT. This workshop will offer tools for creating and sustaining more loving relationships, navigating challenges, and working together as a team.
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Women's Empowerment Circle
Thursdays @ 10:00 AM PST
Join Pamela Russell on Thursdays at 10 am PT, every week for our Women’s Empowerment Circle Meet Up. Experience community through organic support with other Rare Mothers that might be in the same space as you. Come as you are. No preparation is required to join.
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A Man's Journey
Mondays @ 6:00 PM PST
Join Christopher Velona on Mondays @ 6:00 pm PST for our Men’s Monthly Meet Up. This group is here to help break the stigma around men’s mental health. Societal norms tell us that men do not need any emotional support at all.
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Raregivers Monthly Meetup
2nd Wednesday of Every Month @ 6:00 PM PST
Join Padma Gordon on the second Wednesday of every month, from 6 - 7:00 PM PT. Come to listen, come to participate, come to connect - just come as you are! The conversation will center upon the needs, desires, and situations as unique as the group gathered.
Honor Our Raregivers™
There are 350 million people worldwide living with a rare disease, more than AIDS and cancer combined. There are no cures for the 10000+ rare diseases and only 5% have treatments. One third of rare children will not see their 5th Birthday.
Raregivers provides emotional support to families living with rare, chronic and complex diseases. The reality of daily long-term caregiving is unimaginable. Your generous donation goes directly to sponsoring a Rare Mother or Rare Father in our weekly support groups and quarterly wellness retreats @ Barrett Family Ranch. We can do so much - together.
RAREGIVER JOURNEY MAP
The emotional health of patients, their caregivers, and the professionals supporting them is a drastically undocumented and unsupported reality in rare, chronic and complex disease communities. Since 2019, Raregivers™ has been leading a meta-study of published research, proprietary data and documented, lived experiences that clearly define the common emotional impact on medicalized lives. Our Raregivers™ Emotional Journey Map is free, downloadable for anyone to use in family, medical, social or workplace conversations to help increase understanding about feelings. It is for you.
Raregivers™ Coalition Partners
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