ANGEL AID Unveils Raregivers™ Global Mental Health Initiative for Caregivers, Patients and Professionals

Written By Cristol O'Loughlin

LOS ANGELES, July 12, 2022

ANGEL AID, a nonprofit support organization for families of children with rare diseases, today announced the Raregivers™ Coalition Mental Health & Wellness Program – a global initiative to provide sustainable emotional support for rare disease caregivers, patients and professionals. Leading a coalition of doctors, researchers, pharmaceutical companies and patient advocacy organizations, ANGEL AID has taken a significant first step toward providing global mental health support by leading a meta-research study informing the subsequent co-development of a disease-agnostic emotional journey map.

A foundational element of the Raregivers™ Coalition Mental Health & Wellness Program, the Raregivers™ Emotional Journey Map utilizes extensive research from 287 peer-reviewed academic articles, stakeholder reviews, focus groups and data analyst mapping to document a six-stage cycle of hope and grief for rare disease patients, caregivers and the network of professionals working in the field of rare disease. 

Cristol O'Loughlin

Cristol Barrett O’Loughlin is a seasoned executive and storyteller. As Founder and CEO of Raregivers™ (formerly ANGEL AID), Cristol is fiercely passionate about providing social, emotional, physical and financial relief to Raregivers™ ~ patients, caregivers, and professionals who hold both hope and grief in the same human heart. A former UCLA instructor, she co-founded advertising firm, The Craftsman Agency, and is humbled to have advised global brands such as NBA, Walt Disney Company, 20th Century Fox, Microsoft, Cisco and Google. During her tenure at IBM Life Sciences, she helped accelerate advancements in cheminformatics and data-driven biotechnology. Watch her TEDx talk ‘Caring for the Caregivers’ at https://www.raregivers.global/tedx and the ‘Raregivers LIVE’ broadcast from Microsoft to 12 cities around the world.

https://www.raregivers.global
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Raregivers™ Coalition Expands Global Reach to Support Rare Disease Families &Professionals